Tony Mantor: Why Not Me the World
Autism is a complex neurodevelopmental condition that affects millions of people worldwide.
It is characterized by difficulties in social interaction, communication, and repetitive behaviors.
Although autism is becoming more widely recognized, there is still a lack of understanding and awareness surrounding the condition.
As a result, many individuals and families affected by autism struggle to find the support and resources they need.
Why Not Me The World podcast aims to bridge that gap by providing valuable information and insights into autism, fostering empathy and understanding, and promoting acceptance and inclusion.
Nashville based Music Producer Tony Mantor explores the remarkable impact his guests make by empowering their voices in spreading awareness about autism and helping break down the barriers of understanding.
Join Mantor and his guests as they delve into the world of autism and mental health to explore topics such as diagnosis, treatment, research, and personal stories.
Together, we can create a more informed and compassionate society for individuals with autism.
Tony Mantor: Why Not Me the World
Barry Prizant: Shaping Compassionate Autism Understanding Through Passion, Research, and Personal Narratives
Discover the profound journey of Barry Prizant, one of the leading voices in autism research, as he shares his rich experiences and insights on "Why Not Me."
From his early days at residential summer camps for individuals with disabilities to becoming a pivotal figure in the field, Barry's story is one of passion and dedication. Learn how his academic training in speech and language pathology and psycholinguistics, coupled with hands-on experience, helped shape a more compassionate understanding of autism, moving away from outdated theories like the "refrigerator mother" notion.
Uncover the heartwarming tale behind a bestselling book on autism that has resonated globally, translated into 26 languages.
This episode explores the author's shift from academic writing to heartfelt storytelling, weaving research with personal narratives that appeal to a diverse audience.
We also delve into the importance of honest conversations in the autism community, highlighting the CERTs educational framework and the significance of understanding emotional regulation rather than merely controlling behavior.
Hear from experts and families who share their experiences, offering a well-rounded perspective on autism awareness and support.
Get inspired by the unique stories from autistic individuals themselves, like Justin, an artist living independently and making a difference in his community.
This episode underscores the importance of listening to and learning from autistic voices, reflecting on how personal connections and mutual support can foster a more inclusive society.
As we wrap up, we reflect on the mutual benefits of personal connections and encourage listeners to share the podcast and its inspiring stories.
Join us for an episode filled with empathy, insight, and a powerful call to engage with and support the autism community.
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intro/outro music bed written by T. Wild
Why Not Me the World music published by Mantor Music (BMI)
Welcome to why Not Me, the World Podcast, hosted by Tony Mantor, broadcasting from Music City, usa, nashville, tennessee. Join us as our guests tell us their stories. Some will make you laugh, some will make you cry. Their stories Some will make you laugh, some will make you cry. Real life people who will inspire and show that you are not alone in this world. Hopefully, you gain more awareness, acceptance and a better understanding for autism Around the World. Hi, I'm Tony Mantra. Welcome to why Not Me the World. Today's guest is Barry Prezant. He is a leading expert on autism, an accomplished author, and his accomplishments are just too numerous to mention. You can easily find out more about him by searching his name online. I am very thrilled that he could join us today. So thanks for coming on. Sure, my pleasure. So can you share with us what drew you to get into autism research?
Speaker 2:Well, if I could start with how I got involved with autism, sure, I actually started out as a teenager working in residential summer camps for people with disabilities. Okay, and I always like to say that was about the same year I went to Woodstock.
Speaker 1:Okay.
Speaker 2:I started out working on the ground with people, being responsible for their welfare, their happiness. You know we lived with the kids. I did that for six years actually, wow. Then, academically, I started to steer my interests towards speech and language pathology. Okay, so I am a speech language pathologist by training, but I was always interested in language and language development. So I had these two kind of parallel tracks of academically becoming more interested in language development. I don't even know if it's a field anymore, but I was a psycholinguistics major, which has to do with the relationship between thought and communication and language. And then I was working at summer camps with people who had problems communicating and then went on for my master's and doctorate in communication disorders.
Speaker 1:That's quite a good background and how you developed that.
Speaker 2:Yeah, and I always say to have the experience of, you know, not the 24-7 experience that parents have, but to have the experience of literally being responsible for the welfare and happiness of people with different kinds of disabilities, and there was a mix of autistic people, both children and adults. It really grounded me, sure, and it allowed me, from very early on, to question a lot of what I was reading in the academic literature which I felt was very inaccurate at that time, from my personal experience.
Speaker 1:Okay, so this was what about 40, 50 years ago, something like that, More than 50 years ago, okay, 1960, 1968, 1969. Okay, so that was in a time when autism really wasn't well known and people didn't really know what it was all about. So that would say that you was kind of on the very beginnings of the knowledge that was to come out in later years in developing what autism is Well to some extent.
Speaker 2:I think there was a lot of misunderstanding about autism. Right, I worked in let's see 1971, 1972 in Buffalo Children's Hospital. I worked in a classroom program for kids who were all diagnosed as autistic. You know, this was just kind of the end of the era of what was called the refrigerator mother era, that bad parenting caused autism. We never felt that way. The people I work with never felt that way. So it was about three eras ago.
Speaker 1:Yeah, that's a long time. For sure, I had Temple Granadon. Yeah, one of the things that she focused on was how we have gotten better at not blaming the parents for the autistic children.
Speaker 2:Yes, absolutely yeah, and I, because I've been around a while I organized conferences for many years because we do a parent retreat weekend. It's actually next weekend. It's our 26th annual parent retreat weekend and it's a really great experience. So we had fundraising conferences and I've hosted Temple three or four times. As a matter of fact, she called me the other day just to chat about something. So I think she is just such an incredible person and she really is the person who helped us think about how autistic people think and see the world.
Speaker 1:Yes, she is definitely great because she is in the realm of what you see is what you get. Yes, that's kind of refreshing in this world because a lot of people are trying to put this mask on and show people what they aren't, rather than just showing people what they are.
Speaker 2:It is so true and that's why I do. I continue to do what I started doing 50 years ago. I just, I now collaborate with quite a few autistic people. I've published with them, I present and it's just so refreshing to have, you know, no hidden agendas, not these layers of being politically correct Right the honesty and the sincerity and the loyalty yeah, I have some autistic friends who've really helped me out. They're just very, very loyal people. Yes, and even when you talk about autistic kids or people who are more challenged in their ability to communicate I've done a number of interviews with non-speaking people who use spelling boards it's still the same honesty and the same directness.
Speaker 1:Yeah, so when you moved from the summer camps then to the college world, what was after that and what developed to lead you to where you are today?
Speaker 2:Well, let me just say, without naming names of people that you know your listeners won't know, I had great mentors, wonderful mentors along the way. So I was initially I was in university programs for speech and language pathology, but then I was recruited at a relatively young age, early in my career. I was about 34. Okay, I was recruited to the Brown University Program in Medicine to develop a department in a children's psychiatric hospital. Wow, and that was significant because it actually was the very first, if you want to call it speech, language pathology, or now people refer to communication disorders. It was the very first department focusing on communication in issues in kids, with issues that were defined as emotional behavioral disorders. Okay, and autism was kind of associated with that. So I was in a children's psychiatric hospital for almost 10 years and then went on to a few other universities after that, but I've been in private practice for almost 30 years now.
Speaker 2:Wow, that's great With what's called, you know, adjunct appointments in different universities. So I still go out there and get into preschools and last week I was hanging out with classrooms of four and five year olds and I love them. I just love it, yeah.
Speaker 1:Yeah, that's great, because when you're working with kids, you get what we was talking about before, and that's the honesty factor. There's no filters, they just say what's on their mind, and it's kind of refreshing actually, and sometimes you can get the most intriguing conversations by that honesty.
Speaker 2:Yeah, absolutely, and you know. The other piece that I've been so privileged to have is that I live in an area I've lived in. I'm a New York City kid. I grew up in Brooklyn and then went way to school, but I've been living in Rhode Island with my wife and raising my son, who's now an adult, for 40 years and it's a relatively non-transient area. There are families who stay and they pretty much stay grounded here. So I know families whose kids I first met when they were three, four, five years of age, who are now in their 30s. So I have had the chance to follow the journey of families and all the stages and steps and challenges and victories and celebrations that they've gone through as well.
Speaker 1:Well, I can definitely relate to that because I'm originally from Maine. Ah, there you go, yeah. I go back home a couple times a year and I fondly tell people that I'm going back to the land that I forgot because basically not a lot has changed. Right, there you go, yeah, and like you say, people stay, don't move around much. You can follow the journey of a family from infant to young adult, and you know that's a very good thing to live with.
Speaker 2:Yes, it is a good thing and I love it when you know in this area. You ask for directions to go to a particular place, they say, oh well, you make a left, turn up the road where the Texaco station used to be.
Speaker 1:Yeah, I know exactly what you're talking about there for sure. So you help everyone, from kids to adults, is that correct?
Speaker 2:Yes, yeah, I mean literally I'm involved right around the time of early diagnosis of some kids. I meet families whose kids were just diagnosed a month or two before, especially when I go out to schools and preschools. But I also am very involved and I don't know if you know, but I also do a podcast with an autistic audio engineer. Oh, that's great. Yeah, his name is Dave Finch and we've been doing this for three years. It's called Uniquely Human the podcast. Again, I've had the privilege to interview and get to know, oh, at least 50 autistic people who specialize in different areas in their lives.
Speaker 1:Yeah, that's nice. That's kind of what I've been doing over the last year. Exactly, yeah, I'm interviewing people that are either autistic, raising autistic children, finding out that they are autistic, or finding out they're autistic later in life. It's been such a wide view that I've had and I'm just hoping that people that listen pick up something that can help them in their lives and hopefully it's just a win-win situation for everyone involved.
Speaker 2:Yes, yeah. And when I have kind of younger professionals kind of ask well, how did you get to where you are and what you do, and I say hang out with families and hang out with autistic people. Yeah, I did the academic thing and I'm not going to go through my credentials, but I was lucky enough to be promoted and do all that kind of stuff. And I still say by far most of what I've learned is from families and from autistic people. Yeah, I follow the research and I read it, but if you want to get the authentic lived experience, as you know, that's what you do.
Speaker 1:Absolutely so. Yeah, you've done so much and I know that everyone out there definitely appreciates it, but so that my audience can know what you've done, I think they need to know that you've been invited to speak at the United Nations twice. That's correct, yeah.
Speaker 2:Yeah.
Speaker 1:That must have been pretty awesome.
Speaker 2:Well, first of all, because it's the United Nations, it's definitely has a multicultural focus. Yeah, so there are. There was a mom, you know, from Africa, with her son that when he was young they thought he was a demon, you know. And there he is, this wonderful young man with him. It was, first of all, just the recognition and the exposure given to autism. First of all, just the recognition and the exposure given to autism. And the two times I was there actually I was there three times One time just as a visitor, very progressive, I mean very, very forward looking and really trying to put aside the whole stigma across cultures of what autism is. So it was a wonderful experience.
Speaker 1:Oh, I can just imagine it was, and you brought up a good point. There are many countries around the world that even today, think that autism is a product of the devil and it's just a misconception, and I think that just definitely needs to be changed.
Speaker 2:Yeah, and there are countries where there isn't even the word for disability or autism in their language, and that's a little bit different because in some of those cultures, especially agricultural societies, autistic people very often fit very well into that. It's a very physical lifestyle, it's a very routinized lifestyle, a very healthy lifestyle, and we interviewed a woman and this is in the US, obviously an autistic woman who's Ojibwe. She lives in Minnesota and she's very involved at the state level as far as advocacy. She talks about that in the Ojibwe language there's no word for autism and there's no word for disability and they just embrace people for who they are.
Speaker 1:Wow, yeah, that's actually pretty good. Yeah, because that way there's just no labels at all.
Speaker 2:Yes, absolutely.
Speaker 1:Yeah, it's too bad that people in the world just can't discard these labels and just start accepting people for who they are.
Speaker 2:Yeah, it's so true. And what this person said her name is Jules Edwards. What she shared was that. But then they have to deal with the real world and get a diagnosis and put a label on a person so they can get the funding for the support.
Speaker 1:Yeah, that's sad because that's what we have to get the government involved. You mentioned that you have a podcast and it's uniquely human. Is that correct? Right, that's correct. Yes, is that based off your book? It is, so could you tell us a little bit about that?
Speaker 2:Yeah, well, the book was published in its second edition two years ago. It came out in 2015. Okay, it was published in an expanded edition in 2022. I was lucky enough to work with a dad, because so much of my writing had been kind of academic writing for years. So I worked with Tom Fields Meyer, who does everything from help people write their memoirs, and he has an adult son with autism. So we became very good friends and the book has been the bestselling book in autism since 2015. Wow, that's great. It's a storybook, the book of stories of kids and families.
Speaker 2:And then I bring in kind of some of the research we've done over the years. You know, quite honestly, I never expected it to get the reception that it's gotten. It really blows me away. I mean, I get, I get notes, emails, letters from parents whose kids were just diagnosed a week before and somebody recommended the book. I've gotten notes from autistic people in their 60s saying, oh my God, I diagnosed myself by reading your book, wow. And so it's just such an honor, you know, to be able to put something out there and it's really the only mainstream work that I did. We have an educational model and we have these books that are kind of written for graduate classes in universities and my son and my wife would hear all these stories that I would tell about what I've learned and they would say you would hear all these stories that I would tell about what I've learned and they would say you need to write a storybook. So I went ahead and I did it and, quite honestly, I never, ever expected the reception. So it's now translated into 26 languages.
Speaker 1:Wow, that's so nice. I can fully understand your non-comprehension about how it's doing well, because I was in the same situation with my podcast and I've been totally amazed at what it's done so far. Yeah, I'd started to help a few people doing a couple of shows a month, didn't expect it to last, you know, much more than a couple three months, and then all of a sudden it just exploded on me. So you just never know what to expect.
Speaker 2:Yeah, there's such a need for straightforward honesty, you know, and also there's such a need for podcasting information that's all not heavy and not doom and gloom.
Speaker 1:Absolutely, and that's a great thing. I've had the privilege of interviewing Well, I don't call it interviews, I call it conversations, like you and I having right now. Yeah, I've had conversations with people that have been diagnosed in their 30s and, of course, the 40s. Yes, I've also had Dr Rachel Mosley, where we talked about suicide among young autistic females and when people heard that they thought it was going to be very dark and very morbid, but it wasn't. It was all about information.
Speaker 2:Yeah.
Speaker 1:And, of course, I've talked with Temple and just so many people that have given such great information that will definitely help others. I talked with one lady that her son developed from a small kid to a six foot two, three hundred ninety pounds and when he had a meltdown it was just devastating. Those things have to be put out there so that people can understand what needs to be done to help so many others that are living day to day.
Speaker 2:Yeah, I think for parents and family members and professionals who are really in the trenches every day. One of our guests once said my autism gives me a BS barometer. I know if this person is just kind of well, they read something or they're a self-appointed expert as opposed to they've been there and they've lived the experience and I think people really appreciate it and so it's so important that you're doing that, absolutely.
Speaker 1:I love that BS barometer. I think I'm going to have to remember that. I think the biggest thing out of hopefully your podcast and mine and others out there is getting the understanding of autism, because so many people are aware of it and they accept it, but they truly just don't understand it and then it gets laid on autistic people and families.
Speaker 2:As a matter of fact, I'm now kind of sketching out possibilities for a follow-up book, and I'm thinking of the title being misunderstood.
Speaker 1:Yeah.
Speaker 2:Yeah, that's great. I mean the kinds of things, the kinds of attributions made about autistic people, you know, going way back to Leo Kanner in 1943, I mean it's just horrendous. Yeah, yeah, it's as well, yeah.
Speaker 1:Yeah, I think that autism was actually first diagnosed in like 1910, and it was two words psychosic and psychotic. Yes, so to get it from those two words to what it is today, that's a pretty large leap actually.
Speaker 2:Oh, absolutely, and you know, I think the other thing that I know I could speak personally, but I really try to emphasize when I give talks now is that if you understand people who have very different what we call developmental profiles they're really good at some things and not so good at other things then you could reflect on yourself and be more self-aware of what you're really good at and what you're not so good at.
Speaker 1:Yeah, that's actually good self-diagnosis. Now I think you come up with something else that people need to know about. I think it's called what CERTs.
Speaker 2:Yes, yeah.
Speaker 1:So can you elaborate on that and tell us a little bit about it?
Speaker 2:Yeah, that's an educational framework, Okay, in which we identify what we feel are the highest, what we call the highest priority areas to work on, okay. And so CERTs stands for the SC is social communication, and I mean, there's nobody who disagrees with the fact that communication opens up so many doors to a good quality of life. So that's and the second domain is the ER of certs, emotional regulation, and we feel that's something that's really been left out for so many years, because people talk about behavior management. How do you manage the behavior? So you just spoke about a young man who's 300 some odd pounds and when he has a meltdown, oh my goodness, we would say why is this young man dysregulated and how can we help him to maintain a well-regulated emotional and physiological state? And that's not even in the DSM diagnostic criteria, yet it still is one of the most challenging things, even for the most intellectually gifted, autistic people. You know anxiety issues such as that are really big. So that's social communication, emotional regulation.
Speaker 2:The third domain and the final domain is the TS and that's transactional support, and it's a fancy word. I'm not going to get into the specifics of what transactional is, but it's all of the ways that we support an individual, a family member, how do we support them educationally? How do we support them in developing trusting relationships? So we talk about learning supports and interpersonal supports. That's a huge issue A very dear friend of mine, michael John Carley, who's autistic. We wrote a two-part article on developing trust with autistic people. But families so often don't find professionals trustworthy or school districts trustworthy. So that's the obligation that falls on the rest of us. How do we provide support, which we call transactional support, which means it's a two-way street? You know how do we provide support so that you know a person on the spectrum in the family could have the best quality of life?
Speaker 1:Yeah, that's great, because when you stop and think about it, when a young child is diagnosed autistic and they get that label, even though the school system will treat them a little bit differently in trying to help them, if they're not fully prepared and don't understand it, then ultimately it can spiral out of control.
Speaker 2:Absolutely. And you know, one of the things that is kind of tricky to understand is that even sometimes the best intentioned people, the people who are really well intentioned, are doing things that are just throwing gasoline on the fire.
Speaker 1:Yeah, absolutely. It reminds me of a lady I spoke with that was a special needs teacher and because of that she thought she was just going to be a great autistic mom and ultimately, when she started living it day to day, she had to stop and reevaluate things because it wasn't exactly as she expected.
Speaker 2:Absolutely, and there's another angle to this as well. You can have a teacher who's wonderful with autistic children, or a particular child they might be. You could have a whatever occupational therapist, speech and language pathologist who's really great with a kid, but they don't know how to communicate with parents and they unintentionally make the parents feel more guilty. They're not doing enough. That's something that's a big part of my work. I work a lot with families and help professionals on really to learn how to listen to families and understand where they are in their journey.
Speaker 1:Yeah, so in some cases it sounds like you could be a mediator. You're just helping parents and the professionals find a gateway to working together to help that autistic child Exactly.
Speaker 2:I mean when I do a school consultation, my usual routine is I will observe a child for some period of time in their everyday routines in the classroom and in the school. Then we meet as a team but I always insist the parents be invited in so we all sit down and have this intensive three-hour block of I'll get to know a child a little bit, I'll read some reports, I'll meet with the team. What are things that are going well, what are the things that are not going so well? And let's have the parent's voice involved in all of that.
Speaker 1:Yeah, because ultimately they're going to have to live with it on a daily basis. Exactly yeah, and the more they understand and the more they can learn about their child. Ultimately, what they're doing is creating an environment that can lift their child to the next level and, hopefully, better development as well, and it goes both ways.
Speaker 2:Sometimes parents could teach the professionals little things that work and help the professionals have a greater understanding of the child, because the parents see the kids at their best when their kids are most challenged in a lot of different settings.
Speaker 1:Yeah, so have you had a situation where you sat down with a parent or a support person or both. You looked at it and you said, oh, this is a complete disaster, but yet, after listening, talking, going through all the conversations, it turned out to be a very big success.
Speaker 2:Yeah, sometimes it happens around communication, especially a few years ago, when people would always, if a child's not speaking or not speaking yet, that people are pushing speech much too much and the child is not ready. Maybe the child has what's called some motor speech issues, neuromotor issues, and I say no, this child needs another kind of system to communicate. Very, very often. I mean there are stories and we've interviewed some of these people on our podcast of autistic people who didn't speak, who were thought of as severe behavioral disorders and intellectually disabled. When they got a communication system, such as using an iPad with voice output or something like that, there was a huge turnaround. So that's one area where I could make contributions around helping a child's communication system.
Speaker 2:And sometimes it has to do with the relationships between professionals and parents, where the professionals let's say parents just want to do the best for their child and they're extremely stressed out and they're thought of as being too aggressive, that they're blaming the professionals for not doing enough or not listening. I try to go in there and say listen, we're all on the same team. So let's try to clear up some of these misunderstandings. But I often I mean the word you use is absolutely correct.
Speaker 2:I mean, I often find myself in the role of a mediator and try to point out, but I also find myself going into a consultation where, I'll point out, there's a lot to celebrate here. You know, this youngster has made some real progress. You know the parents say, oh well, why isn't he doing this? And I'll say something like, well, you know what was your son or daughter like six months ago? And then they'll say, yeah, I guess he has, or she has, made a lot of kind of savor those moments. And for professionals as well, to savor those moments when everybody could say, yes, we're headed in the right direction. We love this youngster and let's all celebrate the fact that we've had some breakthroughs here.
Speaker 1:Yeah, sometimes you have to step back and look at the body of work. You just can't look at the moment in time. Right now, I know several people that they look at the moments and all they see is the last moments of time, which could be a day, three days or a couple of months. They don't look at the six months to a year and see how their work has really turned something very, very positive.
Speaker 2:Yes, and I mean your comments is just. I really get it why your podcast is so popular. Your comments are just so spot on. So let me share a quote. That from a mom from our parent retreat a few years ago. Her name was Lucy and I asked her what do you value in professionals? And their son just had turned 30. And I first met him when he was six and Lucy said the professionals we have always valued and had the greatest gratitude for were not the ones who ever judged us, they were the ones who joined us on our journey. And what you just said is right on that point. You can't just take a snapshot and live in that point in time. In that snapshot you have to view it as a journey.
Speaker 1:Absolutely. I hear that from all the parents I talk with and they say that it's not just a short race, it's a marathon. So you're standing in an auditorium in front of about a thousand, two thousand people. You've got people that know nothing about autism. You've got just diagnosed autistic people, kids that have just been diagnosed, just the whole spectrum. What are you telling them so they can understand what their journey is going to be?
Speaker 2:Well, I mean it sounds like a shameless plug here, but I get a lot of invitations now, kind of similar to that for keynote addresses, and I start out with let's understand that an autistic child or an autistic person is uniquely human. It is not a list of deficits, is not a list of challenges. Their reactions are human reactions, like your reactions are. My reactions are so just coincidentally, about three weeks ago I gave a talk at a conference in North Carolina organized by parents, a wonderful foundation where all the money to make goes directly to parents. It's called Autism Strong Foundation and the audience was about 250. Parents and maybe about 20 professionals have that theme, if that's the topic people want me to talk on and have it resonate at an appropriate level so people can kind of relate the message to what they're doing in their lives, whether they're professionals or parents.
Speaker 1:The biggest thing that I've come across is everybody has their unique story to tell. Yes, the old saying you've met one autistic person. You've met one autistic person. Yes, the stories that they have to tell on how they adapt, how they learn from each other. And in just this short period of time, if you go back and you listen to my first one all the way to the latest one at this out is you get a feeling for these people and how they do learn, how to adapt, and then eventually they found that they build off that foundation and then things can grow. And it's going to be a challenge every day with some of them, but at least they're growing and they're headed in the right direction.
Speaker 2:That's right, absolutely, and I think for professionals who are listening to your podcast, we have to play that role. We have to kind of help them understand how they're growing and the changes that they've gone through. Sometimes, when people will say to me oh, you know, I have this child in my classroom and he screams all day, and it'll drop to the floor before going into the cafeteria, and sometimes the first question I'll ask will be okay, now let's talk about when he's doing well. Let's talk about what's supporting her when she is motivated and engaged and in a well-regulated state, because that gives us the clues as to what's working.
Speaker 1:Absolutely. Our conversation has covered a range of important topics. I believe it's been both engaging and informative. I believe there's so much more that we could discuss and analyze. What is one last topic that you might like to focus on and put out there?
Speaker 2:Oh, that we're all always still learning and that we need to listen to the stories of families and we need to listen to the stories of autistic people. Yeah, I like to share that. It's been the because I go back before Temple Grandin, right, you know, before Temple stood up I think it was 1986 at an autism Society conference and said you want to know about autism, ask me. And I'm autistic. And the whole room turned towards her. The field has changed in the most positive directions because of the voices of autistic people and because of the voices of family members. So I was promoted in an Ivy League medical school at the highest levels and I still say most of what I learned has come from, even the last few years, discussions with autistic people on our podcast, hanging out with autistic people, because they have changed what's happening. So the one thing I would say is listen to autistic people you know, listen to family members, get to know them outside of a classroom, outside of a clinic, because you'll become a better person if you do.
Speaker 1:Yeah, I think one thing that truly resonates with me goes right back to my very first episode. It was a lady out of London and she got diagnosed in the 30s. What really blew it up for that podcast episode was the fact that she really showed how focused people can be, yes, and how literal they can be, because her mother came in one morning, opened up the drapes it was a sunny day and she goes this is a great day for the human race and from that point on, she thought she had to race everywhere she went. Yeah, she was trying to beat her time, you know, and that just lit up and everybody just loved that episode because of the way that she put that focus into place. Yes, it's just the stories that they can tell, and they can tell it in such a way that we can smile and laugh with them, not at them. I think that's a real important way that we need to factor in what they do.
Speaker 2:Yes, yeah, and I think you know. One other important point that I would emphasize is the giving back. Even if it's not intentional, like an autistic person helping you out with something, it's the giving back. So there's a young man that I talk about in my book and I show videos of him when I present. His name is Justin Canna.
Speaker 2:I know Justin since he was three. He's now in his late 20s. He lives in his own apartment in New Jersey. He teaches art because he's an artist. His parents were told he's going to need one-to-one lifelong help and I have an interview with an employer of his and the employer it was like a multimedia studio that he worked in for a year and the employer said Justin's a great artist. But so what? There are lots of great artists. Justin, for the time he worked with us, he was kind of an intern in a media studio. Justin was with us, he was a beacon of light who inspired everybody and I think there's that giving back. Once you get to know, like our dear friend Stephen Shore says, once you get to know one autistic person, you get to know that one autistic person. But it's also what you get back from that.
Speaker 1:That's very important. Yeah, yeah, I agree, great conversation. I really appreciate you coming on. Yeah, absolutely.
Speaker 2:My pleasure.
Speaker 1:The pleasure's been all mine. Thanks for taking the time out of your busy schedule to listen to our show today. We hope that you enjoyed it as much as we enjoyed bringing it to you. If you know anyone that would like to tell us their story, send them to TonyMantorcom contact then they can give us their information so one day they may be a guest on our show. One more thing we ask tell everyone everywhere about why Not Me, the world, the conversations we're having and the inspiration our guests give to everyone everywhere that you are not alone in this world.